HEARING HEALTH RESOURCES
“I want to believe, but
I feel lonely, isolated, misunderstood.
I feel lost. I feel powerless.
Where did all my energy go?
I am sick and tired of being sick,
Tired of being in bed all day.
I want to be back to
my normal self, my normal life…
”
Useful Info & Links
What is Sensorineural Hearing Loss (SHL)?
SHL occurs when there is damage to the inner ear (cochlea) or to the nerve pathways from the inner ear (retrocochlear) to the brain. Sensorineural hearing loss cannot be medically or surgically corrected. It is a permanent loss.
Sensorineural hearing loss not only involves a reduction in sound level, or ability to hear faint sounds, but also affects speech understanding, or ability to hear clearly.
VIDEO STORY BY UNIVERSITY OF MIAMI
https://www.youtube.com/watch?v=x1tiEhQR2mY
TYPES OF HEARING LOSS
https://hearinghealthfoundation.org/types-of-hearing-loss/
DEGREES OF HEARING LOSS
https://hearinghealthfoundation.org/degrees-of-hearing-loss/
SECONDARY ENDOLYMPHATIC HYDROPS
https://vestibular.org/secondary-endolymphatic-hydrops-seh
MENIERE'S DISEASE
https://hearinghealthfoundation.org/what-is-menieres-disease/
TINNITUS
https://vestibular.org/tinnitus
HYPERACUSIS
https://hearinghealthfoundation.org/what-is-hyperacusis/?rq=hyperacusis
MENIERE’S FACEBOOK GROUPS
Meniere's Vertigo Tinnitus TMJ : Meniere's no more chat and support group
SPECIALISTS thAt have treated me
Dr. Adrien Eshraghi, MD at University of Miami Health System.(Plantation and Miami, FL, U.S.) Specialties: Neurotology.
Areas of Expertise: Cochlear Implants, Hearing Problems, Ear Surgery, Adult and Pediatric Hearing Loss, Implant Surgery (Cochlear Implants, BAHA, Implantable Hearing Aids), Otology, Neurotology, Skull Base Surgery, Acoustic Neuroma, Integrative approach toward the treatment of Meniere's Disease and Tinnitus, management of kids with multiple disabilities including hearing loss, autism and central processing disorders. Dizziness and Vertigo ONLY when Referred by ENT or Neurologist or Pediatric Dizziness
https://doctors.umiamihealth.org/provider/Adrien+A+Eshraghi/526207
Dr. Tricia Sheehan Scaglione, AuD - Tinnitus Specialist, Assistant Professor, and Clinical Audiologist at University of Miami Health System. (Plantation, FL, U.S.)
https://doctors.umiamihealth.org/provider/Tricia+L+Scaglione/526097
Dr. Sherry Levine, MD., Otolaryngologist / ENT ( Aventura, FL, US) www.sfenta.org
Dr. Andrew M. Lerman, MD., Epileptology/Neurophysiology/Neurology. (Miami, FL, US)
Dr. Jorge Melo Moyano, MD., Otolaryngologist / ENT (Barranquilla, Atlantico, Colombia) , http://www.otocen.co
Alvaro Ordonez, DDS., TMJ Specialist. (South Miami, FL, US)
https://alvaroordonezdds.com/staff/alvaro-ordonez-dds/
*Dr. Aixa Cure, Medica Otorrinolaringología / Ear Nose Throat (ENT) Specialist, in Buenos Aires, Argentina.
*Special thanks to my dear cousin, Aixa Cure for all her advice and support during this difficult time in my life.
Leading Organizations in The hearing health community
Since my sudden hearing loss in 2017, I became familiar with support groups and the organizations listed below. They have become part of my healing journey and I have become part of their groups and communities, first as a patient looking for answers and now as a proud ambassador of their initiatives. I invite you to consider contribute in any way you can, helping them grow so that they can continue helping Vestibular patients like me and you (or someone you know) around the world:
THE HEARING HEALTH FOUNDATION
https://hearinghealthfoundation.org/how-to-help/
VESTIBULAR DISORDERS ASSOCIATION (VEDA):
https://vestibular.org/civicrm/contribute/transact?reset=1&id=5
HEARING LOSS ASSOCIATION OF AMERICA:
https://www.hearingloss.org/make-an-impact/donate/
Do you have a question for me?
Feel free to reach out, I am happy to help if I can.
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